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When the foremost authority on this disease is so willing to share what he knows with the community, it's maddening when people still spew the same tired old half truths and faulty conventional wisdom from Kraplan's site and other care sheets that over simplify and mislead on this disease.
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This is where the majority of info on this disease gets regurgitated from. Most people do not count her site as a credible source, as it is very outdated.