Connie (Mrs. WebSlave)

That's very interesting; I've never heard of that usage for Ivermectin. The paper was published a couple years ago - I wonder if any further research has been done.

After what I have seen concerning COVID and the absolute rabid antagonism towards therapeutics that have had many MANY instances of success in favor of the experimental "vaccines" I have no doubt in my mind whatsoever that the same thing is very likely going on with chemo treatments. Cancer is a real money maker for pharmaceutical companies. Connie told me she read somewhere that there are more cancer treatment workers than there are cancer patients. Based on the bills we have been getting, why on earth would they want to actually find a CURE for cancer and end this lucrative business? This is much better for them. Put people on treatments that may or may not work (but they get paid all the same), that can run for months, and even those that do "work" it is usually only temporary as the cancers will usually come back sooner or later. So cha-ching, more expensive treatments for all those unfortunate cash cows that are now hooked into the system.

May or may not be true. I am sure such tracks would be thoroughly covered over. But honestly it makes me sick in my stomach to think it is likely, even probably, true. After seeing what they did to try to bury Ivermectin and Hydroxychloroquine, they have showed their true colors to me. I had my PCP tell me she could lose her license by prescribing Ivermectin to me. Assuming that the local pharmacies would even fill the prescription. Something seriously, SERIOUSLY wrong with this.

Oh yeah, and we have this interesting little tidbit of info:

On April 5, 2022, the U.S. Food and Drug Administration (FDA) revised the Emergency Use Authorization (EUA) to discontinue the administration of sotrovimab.
Bebtelovimab is Florida’s only available monoclonal antibody treatment.

On January 24, 2022, the U.S. Food and Drug Administration (FDA) revised the Emergency Use Authorizations (EUA) for Eli Lilly’s bamlanivimab-etesevimab and Regeneron’s REGEN-COV monoclonal antibody treatments, discontinuing their use by any U.S. state or jurisdiction. The full Florida Department of Health press release can be found here.

SOURCE: https://floridahealthcovid19.gov/

Now while you are thinking about the above, the below makes it even more interesting:

Biden-Harris Administration Purchases Additional Doses of Bebtelovimab to Treat High-risk COVID-19 Patients

On June 29, the U.S. Department of Health and Human Services, in coordination with the U.S. Department of Defense, ordered an additional 150,000 doses of bebtelovimab for use in treating patients who have been diagnosed with COVID-19 and are at high risk of hospitalization from the infection. The medicine is administered as an injection and is the only monoclonal antibody medication currently found to be effective for treating infections from the SARS-COV-2 omicron variant and sub-variants.

This commitment brings the total U.S. government purchase of bebtelovimab to 750,000 doses. This latest purchase and the doses available from previous purchases are expected to meet current demand levels through late-August. The U.S. government intends these newly procured doses to provide a bridge while it supports Lilly to create a path for keeping bebtelovimab available in the U.S. in the absence of additional future government funding.

“Therapeutic treatments for COVID-19 have helped reduce hospitalizations, which means they have prevented countless deaths from this illness while decreasing the burden on overworked hospital staff,” said HHS Assistant Secretary for Preparedness and Response Dawn O’Connell. “We are pleased to make this purchase, though we had to shift funds from other important programs in order to make it. As such we will continue to work with Congress to secure additional funding for the critically important tools needed to protect Americans during the pandemic.

The medicine must be administered within seven days of symptom onset and is available with a prescription from a health care provider. The HHS Office of the Assistant Secretary for Preparedness and Response (ASPR), which funded the latest purchase, also created a therapeutics locator for health care providers to assist their patients in filling prescriptions for bebtelovimab and a therapeutics clinical decision aid to help clinicians determine which of the available products is most likely to be effective for individual patients.

The government-procured COVID-19 therapeutics can be used to prevent or treat eligible, non-hospitalized patients who have tested positive for COVID-19, have mild to moderate symptoms and are at high risk for progressing to severe COVID-19 and hospitalization. Prevention and early treatment for eligible patients can help improve patient outcomes, reduce stress on healthcare facilities, and even save lives.

HHS/ASPR is actively partnering with state and territorial health departments as well as national health care and medical organizations and associations to help ensure equitable access to the treatments for those who need it most.

SOURCE: https://aspr.hhs.gov/newsroom/Pages/bebtelovimab-30June22.aspx

Date of above quote is 30 June, 2022, btw.

Yeah, maybe I am just not seeing something that it obvious to other people, but damn.....

Sorry, I know this has gone WAY off topic, but every time I take Connie to that "chemo farm", well, it just gives me a real bad feeling about what this country (world?) has become.
 
I haven't had time to check out the other links, but I also believe that cancer is too profitable to cure. When my dad was at University of Michigan with lymphoma, they just kept bombarding him with different chemotherapy drugs. By the time his insurance maxed out ($1M), they decided that he wasn't responding to treatment, and he died two days later.

Coincidence? Maybe, but it's odd that they were willing to try everything, until his insurance wasn't going to pay for any more treatments. They got their million bucks, so it was a win; well, for them, anyway.
 
Connie's blood work seemed to be OK this week. Low on some things and high on others. The only thing the oncologist was concerned about was the platelet count (I think). If the chemo had been scheduled for today, I believe they would have postponed it for a week. So I guess we'll see how the blood work looks next week. Dr. Ellison said that she really can't recommend anything to help with that count, as it is something that only time seems to be able to help. Time not being exposed to chemo drugs, I assume.

Connie seems to be in pretty good spirits with only some minor issue that effects her being able to sit comfortably. I don't think she would want me going into any more detail than that.

I am glad she is not suffering some of the possible side effects that she could be going through. No nausea, so she has a pretty good appetite. She read of people getting sores in their mouths and throat so bad that they could not eat, so that potential did have us worried. Every now and again Connie's voice will get a little hoarse, but nothing worse than that. And I think if she had lost her appetite, and not eating like she is, she would lose weight rapidly. She has to eat a lot just to keep her weight up to 105 lbs or so. And she is trying to walk around as much as she can for exercise.

Hoping they do another test soon for that tumor marker they monitor and we see the number dropping even more. Must be a reason why they don't do the test more often, I guess.
 
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I am very happy, Connie, is doing okay. Despite some of the side effects. That article you posted is absolutely amazing!! Thank you, for sharing that with all of us.
 
The main reason there are so many people working on cancer is because treatments have to be tailored to the kind of cancer and what is becoming evident that the cancer in an individual may respond better to a customization of treatment regiment as opposed to a one plan for everyone. An example of this is papillary forms of breast cancer that are often benign. Cancer treatments are profitable because most people want to survive cancer and there are more than 200 types of cancer.. Consider the price of Cuora trifasciata because of the demand for it as a cancer treatment in Asia...

Some thoughts

Ed
 
Well, I can see that point, somewhat. And I am pretty sure that "whatever the market will bear" plays a big part in pricing for the drugs being used to treat cancer. For instance, once of the drugs Connie is getting lists on the oncology center's billing for around $12,000. What Connie's insurance plan (Medicare + supplemental) is charged is substantially less, and we have to pay 20% of that reduced amount. Still around $700 a pop, if I remember correctly. Not too bad, but not exactly chump change, neither. Still, I would rather it came with some sort of guarantee, and wish that the list of side effects didn't scare the bejeesus out of us. But like I said to Connie one day recently, it may be a choice needing to be made: (1) take the drugs and you might still die, or (2) don't take the drugs and you certainly will die.

I am sure people with cancer are usually desperate for a cure. I know I would leap at the chance of anything that would help Connie. But not sure that would include fresh "turtle squeezings", however. It would take a LOT of convincing for me to accept that as being helpful.

As for the number of people involved in the cancer treatment field, my point is that coming up for an actual cure for all cancers would put a lot of people out of work and a lot of businesses out of business. How much incentive is there really out there to find such a cure? If the cure were coming from the people who have, or have someone they love with, cancer, no problem. It would be public domain in a heart beat. But the people developing the drugs being used, if they were to stumble on an actual cure? Not sure from a business sense how they would treat such a discovery. My gut feeling is that there is a excellent chance it would be mostly buried to where it would be available only to selected individuals ,and then done highly secretively and VERY expensive.
 
Well, Connie was supposed to have chemo today, but she had an appointment with Dr. Ellison beforehand. She wanted to ask her if she could cut back the Bevacizumab since Ellison has said she was cutting back the Carboplatin for this treatment. Connie has been having problems being pretty hoarse much of the time and that is a known side effect of the Bevacizumab chemo drug. Plus she has been having some leg and feet swelling as well, even this long after the last chemo treatment.

So Dr. Ellison threw us a curve ball. She said she is going to stop treatment altogether. Now Dr. Ellison doesn't have that great of a bedside manner, and instead of immediately explaining what she had in mind, both Connie and I just jumped to the conclusion that she was saying "Sorry, I can't help you. Hit the road." Of course Connie started crying, and that about broke my heart right then and there. I said to Ellison, "Sounds like you are just giving up on Connie."

But no, what she meant was to stop treatment with those particular drugs, do a CT scan (not sure what she would be looking for, but I am assuming she would be looking for additional developing tumors) and the decide from there where to go. On the plus side, Connie's number for the CA125 tumor marker from her blood work dropped down further to 211, so it sure seems like that is a good sign.

So heck, I don't know. What would it mean if they find more tumors? What will it mean if they don't? I am guessing they have other drugs in their arsenal, so do they try something else to see how Connie responds to it? Or can they continue with the current drug regiment but just stretch the period between doses from the 3 weeks out to 4 to 5 weeks? I guess the all important sign would be what that CA125 number is showing.

Connie looked up info online on that Bevacizumab drug, and apparently the hoarseness could mean something quite serious. People have lost their voice permanently, and some had to have surgery to repair damage from it. So it seems that Connie's bringing her symptoms to Ellison's attention obviously triggered something.

So Connie has a CT scan scheduled for the end of next week. I have no idea where things will go from there. I know Connie is worried about her "quality" of life here on out. Losing her voice permanently was not very attractive to her, regardless of the status of the cancer. She is worried about having permanent side effects that just might make that "quality" of life nothing near what she wants out of the rest of her life. How the heck am I supposed to respond to that? I would accept whatever burden I have to have, but she is not going to allow that to happen. Being alive, but bed ridden and in constant pain and only half alive is no life at all as far as she is concerned. And what sort of monster would I be if I insisted that was good enough for me to still have her around?

Might be a valium night tonight..........
 
Given the events over the past few months I'm not surprised the two of you automatically respond to change - any change - with a OH CRAP THINGS ARE BAD AND GETTING WORSE reaction. I'd be rather surprised if you didn’t react that way.

That said, I think in the future it would benefit both of you if you reminded each other before each visit that this doctor's bedside manner sucks, and you're not paying her for her empathy and bedside manner, you're paying her to treat Connie. So, when the doctor makes a statement like "I think we should do or stop doing X" and no explanation is forthcoming, ask the reason why, or for the alternative course of action, before immediately jumping to the worst possible conclusion. If nothing else you won't need as much valium.
 
Well, for the most part, that sounds very very promising. :)

For whatever it is worth: I have doctors with horrible bedside manner, over the years. But, they have made me "better" physically I mean. Mentally, do you think anyone can help me, LOL!!
 
Addendum:

After Connie and I had talked to Dr. Ellison, we needed to talk to the front office people because Connie had paid for the Dignicap thing in advance thinking she was going to get chemo today. Since that didn't happen, she needed to get a refund of that money. Bad enough that when we walked to the front counter, the girl asked us "Did anyone tell you about the $2,400 you owe us?" :ack2:

Anyway, I asked to talk to the office manager, as I wanted to ask her if she found out why our transfer to a different oncologist at the facility had apparently been denied. She said that yes, she had looked into it, and apparently Dr. Ellison refused to let go of Connie. She felt she was the best qualified to help her and that it would be a mistake to change doctors. So I am not sure what to think about that. I thought WE had that choice to make, not her.

But one good thing about talking to the office manager. She was a very caring person and reassured us that this sort of thing with pausing treatment is very common there. It is a balancing act on a thin wire between trying to kill the cancer without killing the patient too. She did really help boost our spirits quite a bit.

Anyway, Connie and I had some long talks today. She says she is mad at herself for not toughing out the side effects and just keeping up with the treatments. She felt if she could have done that, in maybe no more than 3 more chemo treatments, she might be considered as being "cancer free". But as I told her, she really didn't have any choice. The chemo effects are likely cumulative, so did she really want to risk permanently losing her voice, or possibly having to undergo surgery to repair a damaged larynx? Perhaps Dr. Ellison is correct, and stopping the chemo treatments right now is the smartest thing to do. Perhaps the side effects will go away, or at least greatly diminish in the next week or two. Than after the CT scan, evaluate the options. I am hoping they will not find any other tumors in Connie, and she just has a matter of those loose cancer cells to deal with. Yeah, I know, those cells don't stay unattached and free floating forever. They eventually will land and multiply to form a tumor. But perhaps we will find that the chemo side effects diminish enough in 5 weeks for Connie to go into a 5 week cycle for chemo instead of the 3 week cycle.

Or other drugs can be administered, which hopefully Connie won't have such reactions to. Honestly, I suspect that every drug is going to have side effects. And some will be worse for some people and some better for others. Hopefully none will hit Connie as hard as that initial Taxol dose that knocked her unconscious.

So heck, I don't know. When Connie was diagnosed with cancer, some people told us that we will be going through Hell for a while. They were not wrong, and the trip is far from over with.
 
Sigh . . . An oncologist with a poor bedside manner would be a deal-breaker, for me. Their patients are very ill, and need someone pleasant, thorough, and caring, to see them through what may be the worst time of their lives.

As far as refusing to let Connie change physicians, that doesn't sound right. Unless your insurance dictates that you use certain providers, you should be able to see whomever you wish.

Sending prayers and positive thoughts your way.
 
Well, bedside manner deficiencies aside, it seems that Dr. Ellison is competent at her job. Today (Thursday) we got a call around 11:30 am to let Connie know that she had an appointment at 1:00pm to have her legs undergo an ultrasound. Apparently Dr. Ellison thought she might have a blood clot causing the swelling she has had. Both Connie and I thought this would be a waste of time, but darn if Dr. Ellison wasn't correct. Blood clot in Connie's left leg. The same leg she had that blood clot in after her surgery which seemed to vanish. Not sure is this is the same clot or a new one, however. The tech said it was "superficial" but not really sure what that means in relation to a blood clot.

Connie has been on a blood thinner all along since her surgery so the nurse (Marissa) at Dr. Ellison's office said it would be best if Connie sees a vascular surgeon since the blood clot apparently showed up will taking a blood thinner. Not sure what this means. But it seems like we are jumping from one pit of hell into another.

Connie still needs to go through an echocardiogram yet. She is trying to get that scheduled with her cardiologist, but not sure they can get her in anytime soon. So she has a backup plan at the hospital at the end of the month. She doesn't want to be in limbo for too long to give the cancer cells in her body to rally for an attack. Then towards the end of the month she also has a CT scan scheduled. Connie picked up some sort of barium liquid that she needs to drink one and two hours before she shows up for the scan. I am sure that will be just yummy.... :ack2:

So, we seem to be teetering on a couple of other pits of hell now. What would the echocardiogram be looking for that Dr. Ellison suspects is worth looking for? And what about that CT Scan? Does Dr. Ellison expect to see something there? Certainly, like the blood clot, none of that finding anything that she might be looking for would likely be good news.

My stomach feels tied up in knots right now. Well, I guess I have held off on taking a Valium long enough. I am probably going to need to have my lights put out in my head tonight.
 
Connie talked to Dr. Ellison today, and Ellison said that based on her review of the images she felt that Connie seeing a vascular surgeon wouldn't be necessary. The "superficial" aspect apparently was significant. Connie just needs to be more "ambulatory", stay on the current level of blood thinner, and try to elevate her feet as much as possible.

That is a relief. I was getting concerned about there being too many "cooks in the kitchen" for her.

Next week is going to be kind of busy as Connie will be getting that echocardiogram as well as a CT scan. Hopefully they will be nothing but good news. Because we still have that bridge to cross concerning what to do about the chemo treatments being resumed. I would really like to see what that CA125 count looks like after her being off of chemo for two weeks. Would be nice to see it continuing to ratchet downwards.

So hoping for the best and trying hard to keep my chin up and a stiff upper lip over this. I did take a valium last night, and thankfully it put me out pretty quickly. I actually fell asleep at the keyboard and had to drag myself to bed when I woke up. I am surprised I am not having awful nightmares from all this. But maybe I am and just don't remember them.
 
That all sounds fairly positive, in my humble opinion. Let us know, how all her appointments go, if you wish. Plus, of course, have the time.
 
Back in my younger days, I used to play in bands. Quite often we would play in bars and nightclubs, and I couldn't help but notice that there were always people who would come into those bars, sit at the bar, and drink until closing. Then get up and leave. I really could not understand why people would do that. But now, later on in life, and with all this going on, I believe I do understand. I can see where people might just need to numb their minds. Bad experiences, bad memories, or just a bad life. Numb the mind to try to forget, or at least push things back into the fog of an alcohol clouded mind.

I have never been much interested in drinking. Never cared for the taste of beer or really any other alcoholic drink. When I played in the bands, I used to have a drink or two, just to loosen up a bit while playing. But beyond that, never had any use for the stuff. I truly hope that things don't get bad enough for me to need to change my attitude.

But I guess as long as my doctor will prescribe valiums for me, that would be just as effective and I don't have to leave the house.

Maybe there is a lesson here I am supposed to learn? Although things haven't gotten really as bad as they could get, the teaching so far has been nonetheless deeply painful.
 
Connie is still having trouble talking. I have enough trouble understanding her as it is, so this is pretty tough. I really hate having to ask her to repeat nearly everything she says. She is trying to not say much to let the throat heal. No phone conversations for her. I told her to just text me as much as possible. There have been cases of that drug causing permanent loss of speech, I guess due to damage to the vocal chords. That would be REALLY upsetting to Connie if that happens to her.

She is REALLY concerned about her having reactions to every drug the oncologist has given her. Including the shots after the chemo treatments to try to beef up her white blood cell count. She is worried that there might not be ANY chemo chemical to kill the cancer cells that she can take without some substantially damaging side effects associated with them.

She has been walking around a lot more lately, and then elevating her legs when she lays down because of the blood clot in her leg. I would like to know if it is in the same spot that earlier one showed up after he surgery. The second time she had an ultrasound, they couldn't find the clot, so we all assumed it was just gone. But if it has been there all along, being "superficial" now, does that mean it has become reduced in size? And is there a danger of it becoming dislodged and migrating to some place where it could cause some real damage?

I just can't think to long and hard about such things or my mind starts to crumple a little bit. I really would like to jump ship from this universe and land in one where neither Connie or I had these health issues knock us down.
 
Well, Connie had an echocardiogram of her heart on Thursday, and a CT scan of her entire torso today (Friday). Haven't heard any news about the results of either of those tests yet, but I am grabbing onto the hopeful thought that no news is good news in this case.

Connie doesn't have anything further scheduled yet with anyone, but I am guessing we will be seeing Dr. Ellison next week sometime to discuss the test results. Just to be safe, I just might pop a valium before that meeting, however. Connie is thinking that nothing bad will happen until this upcoming Labor Day weekend. I think my heart attack on Memorial Day and her being in the hospital after surgery during her May birthday, and my being in the hospital for heart stent surgery a couple of days before my birthday in July has pretty much set the tone for what we can expect out of our lives now.

Connie's throat seems better, and her voice isn't as gravelly sounding as it has been. Hopefully that is healing up OK. She seems to be feeling pretty well, but these tests did stress her out quite a bit, in more ways than one. It is pretty obvious when she gets blood pressure checks at these facilities and they are substantially higher than when she is at home.
 
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