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Critical bill Appreciation Thread. :)

Along with all the good wishes going out to Chuck, lets add some strong support for Maggie- this is the hardest job in the world, keeping your family together while you are running in and out of the hospital under the most immense stresses imaginable.

I think it's much harder than being the one in the bed, and the fact that Maggie finds time and strength to keep this community updated is incredible. I hope that the huge outpouring of support she is getting in return is helping as much as possible.

Maggie, I hope that you are looking after yourself as much as you can during all this, and that once it is over you allow yourself some time to react as needed and recover.
 
In response to Helenthereef - when he gets better, I am taking him to Jamaica, no kids, and renewing our vows on the beach and enjoying every second of him....thanks.

Just got home - very bad day - they said his cat scan was the same yesterday and the last one and that his brain activity is the same, which I took as a good sign, but they told me that I should consider signing a "dnr" or possibly even taking him off the ventilator - obviously, I would never, ever, do either of those things. I believe that the trauma he has sustained will not heal in 2 weeks and I will NOT let anyone give up on my husband. I did take the baby there today and when he started saying "da da" and other little sayings that me and Charles would crack up about, his heart increased from 94 to 101 and then went down again when my mother in law took him out of the room. I take that as a sign and I don't care what anyone else things.

Also, tonight, his hematologist came in and said his toes don't look as bad as everyone keeps saying and the said all hope is not lost - nice that one person in this stupid hospital is not an angel of death....also they said he is breathing very well over the ventilator and that they have him on the lowest setting they can and he is doing great.

So, these people are trying to kill my instead, but I have news for them - me and Charles are not going anywhere and all of you help me through every day and I thank you all.
 
In response to Helenthereef - when he gets better, I am taking him to Jamaica, no kids, and renewing our vows on the beach and enjoying every second of him....thanks.

Just got home - very bad day - they said his cat scan was the same yesterday and the last one and that his brain activity is the same, which I took as a good sign, but they told me that I should consider signing a "dnr" or possibly even taking him off the ventilator - obviously, I would never, ever, do either of those things. I believe that the trauma he has sustained will not heal in 2 weeks and I will NOT let anyone give up on my husband. I did take the baby there today and when he started saying "da da" and other little sayings that me and Charles would crack up about, his heart increased from 94 to 101 and then went down again when my mother in law took him out of the room. I take that as a sign and I don't care what anyone else things.

Also, tonight, his hematologist came in and said his toes don't look as bad as everyone keeps saying and the said all hope is not lost - nice that one person in this stupid hospital is not an angel of death....also they said he is breathing very well over the ventilator and that they have him on the lowest setting they can and he is doing great.

So, these people are trying to kill my instead, but I have news for them - me and Charles are not going anywhere and all of you help me through every day and I thank you all.

In my personal opinion, do not sign the DNR, especially if he is an organ donor. I have one in certain cases but thats me. I dont trust Drs when you are an organ donor with a DNR. At some point, I think they look at harvesting and no longer saving.
 
He does not have organ donor listed on his license and I know he doesn't ever want an autopsy and wants to be cremated - but either way, will NEVER sign that form
 
Hang on to that - it's a great plan, and gives you something to picture in you mind. We'll all look forward to the photos when that comes off!

they will be sonogram pictures of our future child if I have anything to say about it!!!
 
Stay strong Maggie!

You're doing the right thing fighting for him, let him know that you know that he's fighting and you won't stop standing for him. He's doing everything in his currently limited power to let you guys know he's still there & trying to respond.

Don't let any of them do anything permanent to him without a second or even third opinion. Start having somebody else look over his test results as well.

It makes no sense to be removing body parts prematurely let alone be recommending a DNR when a patient isn't in decline and hasn't even had sufficient time to recover from the initial trauma their body has been put through let alone the added stress and damage done from the allergic reaction caused by medication they prescribed.

I'm the one who does hospice care for my family, I'm there for the decline and in the end, at their final release. What you are describing is not the behavior I've observed when they decide to cross over. Don't doubt yourself. You know your man better than any doctor doing the rounds. If he were to choose to stop fighting (like that'll happen w/Chuck :rolleyes:) you would know it. Not saying you'd like like it, but deep down, you would know.



Keep telling him about Jamaica and promise to never make him drink light beer again.
 
Stay strong Maggie!

You're doing the right thing fighting for him, let him know that you know that he's fighting and you won't stop standing for him. He's doing everything in his currently limited power to let you guys know he's still there & trying to respond.

Don't let any of them do anything permanent to him without a second or even third opinion. Start having somebody else look over his test results as well.

It makes no sense to be removing body parts prematurely let alone be recommending a DNR when a patient isn't in decline and hasn't even had sufficient time to recover from the initial trauma their body has been put through let alone the added stress and damage done from the allergic reaction caused by medication they prescribed.

I'm the one who does hospice care for my family, I'm there for the decline and in the end, at their final release. What you are describing is not the behavior I've observed when they decide to cross over. Don't doubt yourself. You know your man better than any doctor doing the rounds. If he were to choose to stop fighting (like that'll happen w/Chuck :rolleyes:) you would know it. Not saying you'd like like it, but deep down, you would know.



Keep telling him about Jamaica and promise to never make him drink light beer again.

Thanks, I appreciate that. I know that I will know, and right now, I don't see that at all.
 
Oh Maggie! I am sorry to hear they are giving you such a hard time.. Keep being strong hun, and know that we will all gang up and kick them doctors in the rear if they don't stop messing with our man!!!
 
As Chuck would say, tell that nurse to STFU and go cook or clean something. ;) Chuck'll be back before ya know it. <3
 
In response to Helenthereef - when he gets better, I am taking him to Jamaica, no kids, and renewing our vows on the beach and enjoying every second of him....thanks.

Just got home - very bad day - they said his cat scan was the same yesterday and the last one and that his brain activity is the same, which I took as a good sign, but they told me that I should consider signing a "dnr" or possibly even taking him off the ventilator - obviously, I would never, ever, do either of those things. I believe that the trauma he has sustained will not heal in 2 weeks and I will NOT let anyone give up on my husband. I did take the baby there today and when he started saying "da da" and other little sayings that me and Charles would crack up about, his heart increased from 94 to 101 and then went down again when my mother in law took him out of the room. I take that as a sign and I don't care what anyone else things.

Also, tonight, his hematologist came in and said his toes don't look as bad as everyone keeps saying and the said all hope is not lost - nice that one person in this stupid hospital is not an angel of death....also they said he is breathing very well over the ventilator and that they have him on the lowest setting they can and he is doing great.

So, these people are trying to kill my instead, but I have news for them - me and Charles are not going anywhere and all of you help me through every day and I thank you all.

Thank you, as always, for the updates Maggie. I honestly cant even begin to thank you enough. I only wish there was more we could do for you.
 
Thank you for another update. As others have stated DO NOT sign that DNR (Do Not Resuscitate for those who do not know)!! Some doctors mean well others do not. And you know that he's doing better and responding to you and your children. As also already stated when it's 'time' you'll know. God never gives us more then he feels we can handle. Right now you're doing amazing! So is Chuck!
Stay stronger and be strong! Keep fighting!
 
I've been avoiding further posting in this thread, but have to say that some of the comments posted don't make a lot of sense to me. I'm not going to go into detail, dispute, or otherwise explain...I don't want to disrupt the thread, or distract from the sentiments being expressed. I just have one question for Maggie:
Maggie, you said that his brain activity is the same - if you don't mind explaining (and I'll certainly understand if you'd rather not) what have they said about it?
 
Since at least one person took offense to my post - what I have been avoiding is asking questions, trying to explain certain things, and disputing a few specific comments made by people who meant no offense. I work in a critical care setting, but I know it isn't my place to offer anything but supportive thoughts in this situation...not being aware of many specific details, it would be inappropriate to comment on the testing, meds, suggestions, etc that Maggie has posted.
Maggie, if YOU took my previous post as an insult/offense, I sincerely apologize. My question about his brain activity was because you had made a previous comment about the possibility of damage. I respectfully retract that question; and will simply state my deepest sympathies for what you and your family are going through, and my best wishes for Chuck.
He is in my thoughts daily.
 
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